Going on a first date can be nerve-wracking under the best of circumstances; epilepsy just adds another twist. One question people often worry about is how soon they should tell their date that they have epilepsy. Being able to ask questions and share feelings on any topic, including epilepsy, will only make a relationship stronger. Although it may seem tempting to tell the other person over the phone, in an email or by text, instead of in person, any serious conversation like this is probably best done face-to-face. The more comfortable you are with the other person, the better the conversation will go. Everyone worries about it to some degree. Some people worry so much that they never ask anyone out at all. Unfortunately, this does happen from time to time. How well they understand epilepsy, and what they feel about it, will reflect the understanding and feelings of the person who teaches them. No one escapes being rejected from time to time.
I started asking myself a lot of questions when I was first diagnosed with epilepsy. How do I tell people I have epilepsy? What birth control can I use? Can I have kids? And on and on. I had so many questions that I decided to start Girls with Nerve , a website focused on sexual and reproductive health for girls with epilepsy.
Dating someone with epilepsy isn’t always easy. There are a lot of things the other person has to understand and accept. If they aren’t willing to do that, it’s never.
C ompared with the general population, patients with newly diagnosed symptomatic epilepsy have reduced life expectancy, according to an investigation published in the November issue of Epilepsia. Patients with newly diagnosed idiopathic or cryptogenic epilepsy, however, have a normal or prolonged life expectancy. The year of diagnosis and the type of epilepsy appear to influence life expectancy. Many studies have suggested increased mortality among patients with epilepsy.
Two previous investigations have reported the more specific measure of life expectancy in epilepsy, but both had methodologic weaknesses and were prone to substantial bias, said Claudia A. Granbichler and colleagues examined data for all patients visiting the epilepsy outpatient clinic of Innsbruck Medical University in Austria to calculate their life expectancy. They included 1, adults who presented between January 1, , and December 31, , in their analysis.
Patient data were recorded and updated continuously over time. They defined symptomatic epilepsy as the result of a known or suspected CNS disorder. Epilepsies not preceded by another disorder were considered idiopathic. The authors defined epilepsies of unknown cause as cryptogenic. The difference in life expectancy between patients with epilepsy and the general population depended on the type of epilepsy and the time of diagnosis.
Between and , patients diagnosed with symptomatic epilepsy had a substantially greater reduction in life expectancy — 7. Regardless of the type of epilepsy, patients diagnosed in subsequent decades had progressively smaller reductions in life expectancy, relative to the general population, or prolonged life expectancy.
How to Support a Child with Epilepsy: Information for Parents
Parker was equally fearless on rocky cliffs, scaling granite walls and working as a climbing instructor. Then, out of the blue, when Parker was 25, he had a devastating seizure. He was home in his bathroom and the seizure sent him crashing into the tub. The convulsions were so violent that they broke his spine in four places. Had he been in the wrong place, he easily could have died. Unfortunately, after the brutal seizure in April of , he was diagnosed with epilepsy and he began having violent seizures monthly, then weekly, and at his lowest point, nearly every day.
Environmental factors may trigger seizures in someone with a genetic susceptibility for epilepsy. Symptomatic (secondary) seizures are more common in adults.
Sexuality is an important part of all of our lives. Being sexual has many meanings, including the release of physical tension, an expression of emotional intimacy for a couple, and occasionally to make a baby. How each of us expresses our sexuality is unique and depends on many factors including gender, age, sexual orientation, cultural background, life experiences and medical factors. Does having epilepsy affect sex?
Epilepsy can have affects on sex, and sex has effects on epilepsy. Many people with well controlled epilepsy have a comfortable, satisfying sex life. Having a supportive partner who provides emotional closeness, as well as sexual intimacy, is perhaps the greatest asset in helping people with epilepsy feel positive about themselves, which in turn improves seizure control. Sex can release stress, and help relax people, thereby reducing seizure frequency.
People living with epilepsy frequently encounter sexual difficulties. These can be due to the epilepsy itself, the medications used to treat the illness, or due to reactions of partners and others to the diagnosis of epilepsy. One of the commonest sexual effects of epilepsy is the decrease or loss of desire. This is variable depending on the type of epilepsy a person is dealing with.
Erectile dysfunction is also a common problem for men with epilepsy. Sexual difficulties are found to be more significant in people whose epilepsy started before adolescence.
Information for Employers
Talk to your child’s doctor about what activities your child can do and encourage your child to participate. As your child grows, help him become more independent. Seizures occur most frequently during the first few years of life , during a time when the brain is going through its most dramatic growth and changes. However, diagnosing seizures in infants can be difficult, as they cannot communicate what they are feeling after a seizure or during medical tests. Parents and caregivers observations are especially valuable and necessary for doctor’s to effectively treat infants and toddlers with epilepsy.
In general, a person is not considered to have epilepsy until he or she has had two “Epilepsy: Hope Through Research”, NINDS, Publication date April
Epilepsy, also known as a seizure disorder, is a disorder of the brain that causes recurrent, unprovoked seizures. Those seizures are caused by surges of electrical activity in the brain, often compared to an electric storm. In most cases, the cause of epilepsy is unknown. Ley Sander, medical director at the Epilepsy Society in the U. In fact, most people with epilepsy experience “partial” or focal seizures. These affect one area of the brain and can result in an aura, physiological reactions, or motor and sensory changes.
The dramatic convulsions that most people associate with epilepsy are a result of a seizure affecting both sides of the brain at once. These “generalized” seizures can also cause “staring spells,” brief body jerking, and “drop attacks” suddenly falling to the ground. If a person is not known to already have epilepsy or has a complicated medical condition, then emergency care may be needed sooner. For other types of seizures, it is important to remain with the person, gently guide them from danger but avoid restraining them , and call if the seizure lasts longer than five minutes.
A person having a convulsive seizure may briefly stop breathing and have a blue skin color, but Stern explains that “this is mostly due to the diaphragm becoming stiff along with the other muscles for breathing. This is normal and brief, and the person will start breathing normally again as soon as their muscles relax. Do not attempt mouth-to-mouth or CPR during a convulsive seizure.
Positioning the person on their side with their mouth pointed downward is the best way to keep their airway open.
Peter Fox explores your views in a Facebook debate about dating sites. Do they actually work? Is love ever as simple as the greetings card industry would have us believe? I know a couple who, to my mind, are perfect for each other. The kind of couple that make you believe love really exists. Certainly where epilepsy is concerned this can be a very sensitive subject.
Life expectancy among patients with idiopathic or cryptogenic epilepsy is in men) than people diagnosed with idiopathic epilepsy (– years in women and – because of their varying dates of entry and the investigation’s fixed end date.
Epilepsy is a brain condition that causes repeated episodes of sudden, brief changes in the brain’s electrical activity. These changes cause various types of symptoms. Epileptic episodes are called seizures or convulsions. During a seizure, brain cells fire uncontrollably at up to four times their normal rate. Seizures temporarily affect the way a person behaves, moves, thinks or feels. The symptoms of epilepsy vary. They depend on how much of the brain is affected, and where the affected area is located.
From epilepsy nightmare to ‘neuro ninja’
His scars show how far he’s been in seizures, and that he’s a surviver which makes him more of a man in my book! If you really like this guy youcan like him for everything that he is! Rosegirl, Why be afraid of someone you really like.
Information about symptoms of epilepsy or epilepsy treatment.
Bertha C. Ekeh, Udeme E. Background and Aim. Epilepsy remains a stigmatized disease especially in Sub-Saharan Africa. Lack of information and illiteracy has been blamed as the cause of the stigmatization. This stigmatization stems from the fact that the traditional African belief views epilepsy as a spiritual disease. We studied the knowledge, attitude, and perception towards epilepsy amongst medical students comparing the knowledge of the clinical students with that of the basic medical preclinical students.
The participants were medical students in University of Uyo. We administered questionnaires which explored the knowledge of etiology perceived and medically proven. We studied the beliefs in infectivity of epilepsy, treatment together with their attitudes, and perception to persons with epilepsy. Most of the participants do not have a good knowledge of epilepsy. The knowledge, however, was much better amongst the clinical students.
There is some difference in the attitudes of the clinical students compared with the basic students.